Over the past ten months, we’ve done our best to keep our families healthy. But this ongoing stress and uncertainty takes a toll on all of us.
Your loved one may seem down or anxious. Or perhaps they’re behaving in ways that are unusual for them.
Even before COVID-19, mental health problems like depression and anxiety were common for people with developmental disabilities. So we worry about how our loved ones are coping now.
It’s tricky for us to recognize mental health problems—especially since our loved ones can’t always express how they’re feeling.
Fortunately, HELP is here! The acronym HELP enables us to understand and respond to mental health concerns and behaviours that challenge.
Sometimes we mistake health issues for behavioural or mental health problems. Perhaps your loved one has pain or discomfort that they’re unable to express. Always start by ruling out any physical health problems.
- Use these Health Monitoring Charts to track health issues that could cause discomfort (menstrual cycle, constipation, sleep etc). These charts also monitor if a medication or treatment is helping.
- Use these About My Health Tools to help your loved one tell their story when they visit healthcare providers.
E — Environment
Pandemic restrictions can mean that many important activities in your loved one’s life have stopped. While some people have adapted well, others are struggling.
What you can do:
- Provide structure in the day. Read the “You Can Do It” Self-Help booklet together to help your loved one choose meaningful activities—even during a pandemic.
- Get Active:—doing activities, even when you don’t feel like it, can help you feel better. Anything from walking, baking a cake or tidying up can be a powerful mood boost.
L — LIVED EXPERIENCE
We all have positive and challenging events throughout our lives that impact our mental health. Our loves ones may be mourning the loss of friends, jobs and activities in their pre-pandemic life. We can start by listening and by helping our loved ones express their feelings. Then we can help them share their story with others.
What you can do:
- Read these COVID-19 Self Help Booklets especially designed for adults with developmental disabilities and their caregivers. Topics include anxiety, feeling down, sleep, problem solving and being active.
- Look at Books Beyond Words with your loved ones. Wordless, illustrated books include various topics on coping with Covid19, plus instructional tips for caregivers. See the booklet Good Days and Bad Days During Lockdown to share ideas and feelings about life during COVID-19.
- Try these Autism Informed Guided Mindful Meditations by Sue Hutton.
P — Psychiatric Diagnosis
Sometimes our loved ones may have a psychiatric problem such as depression or serious anxiety. These problems can be diagnosed and treated by a mental health professional after we have thought through H,E, and L (Health, Environment, Lived Experience and Listening).
What you can do:
- Recognize Mental Health Difficulties
Help your loved one fill out this Know Your Normal Kit. It enables a person to understand and communicate what is normal for them and to recognize when they need help. Or they can fill out Understanding My Strong Mind.
- Contact Your Family Doctor: Track and monitor moods and behaviours so you have clear information to share. Use tools such as My Health Care Visit to help your loved one tell their story at their appointment. Your doctor can be a key resource and support, even if you’re waiting for a consultation with a mental health professional.
- Look after yourself. Keep track of your own mental health and reach out for help when you need it. Use this “Tolerance for Uncertainty: A COVID-19 Workbook” for healthy coping strategies and for ways to nurture yourself.
- Make a plan and know who to contact in case of emergency. It can be helpful to have information in writing in case your loved one needs to visit a hospital during COVID-19. See the Hospital Transfer form.
- “HELP during COVID-19. Thoughts on supporting the mental health needs of adults with developmental disabilities and their families.”
- “We all Need a Little Help” for adults with developmental disabilities.
- Mental Health Matters - Autism Ontario Mental Health supports and programs for adults with Autism Spectrum Disorders
OTHER MANAGING THE NEXT WAVE TIP SHEETS
Need Someone To Speak With
Your Staying Healthy Winter Checklist
Get Creative and Get Involved
Connecting Virtually with Other Families
Self-care during Covid-19
If you have other ideas on staying connected during Covid please let us know at email@example.com